Sunday, February 12, 2012

My Husband's Pesky Pancreas

Today, we leave for UVA.  Tomorrow is the day.
Without going into a long, drawn-out narrative which includes every little detail, here's a little history for those of you who might not know what's going on.
Right before Thanksgiving, Husband was diagnosed with pancreatitis and had to have his gallbladder removed.  It ruptured during surgery, so he was in the hospital for almost a week.  After he returned home, he continued to feel and look (sorry, Hun) worse every single day.  He was yellow.  He lost his appetite.  He lost 25 pounds in just a few weeks.  Finally, after weeks of bad blood test results, the NP at his primary care doctor's office (who just so happens to be one of my very best friends and one of the smartest people I know) called and told us to pack a bag and drive to Charlottesville.  So we did.
Adam was admitted to the hospital at UVA two weeks before Christmas.  His bile duct was dilated and his liver was, for lack of a better description, stopped up with old bile which had begun to thicken.  He had surgery to place a stent in his bile duct to hold it open and allow the bile to drain properly.  I watched his color return to normal in a matter of hours and we came home two days later.
About a month after his first surgery, his doctor in Charlottesville ordered an MRI of his liver to see how everything was looking.  His nurse called with the results a few days later and said that the MRI showed a  mass on his pancreas.  She said the only way to differentiate between autoimmune pancreatitis (where your immune system attacks your pancreas and bile ducts) and pancreatic cancer is a biopsy.  She had dropped the "C" bomb.  And I was scared to death.
Adam's case was reviewed by the tumor board at UVA and the board agrees that it looks like AIP.  But once again, a biopsy is the only way to be sure.  His doctor also ordered a blood test to see if his immune system is making antibodies to fight his pancreas.  Antibodies high = most likely AIP and great news.  Normal antibodies = diagnosis still unknown.  Adam's antibodies are normal.  I know that this doesn't really tell us anything more than we already knew and a biopsy was going to be necessary no matter what the results of the blood test were, but it feels like a HUGE strike against a positive outcome.
So, tomorrow Adam will be having surgery for the doctor to look at his pancreas and look at his bile ducts and draw tissue samples.  Samples which will, no doubt, take several days to analyze and report back on.  I feel like the sum total of my life will come down to what gets sucked out into that little syringe.  Adam is hopeful and we are praying.  First for good results, then second for the strength and grace to make it through whatever comes our way.

1 comment:

  1. Jen, i am so sorry you guys are going through all of this. I am praying for you, Adam and Connor - for a good outcome and strength to deal with whatever comes your way. You are doing much better than I would in your situation!

    ReplyDelete